The Scleroderma Book: A Guide For Patients And Families
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| The Scleroderma Book: A Guide For Patients And Families | |||||||||||||||||||||||||||||
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The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation
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| Reader Reviews Below Sorted by Newest First | |||||||||||||||||||||||||||||
| 06-04-08 | 5 | (NA) |
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The book was recommended to me and turned out to be as good as promised. An excellent resource for a basic, easy-to-understand-by-a-lay-person description of scleroderma, including its symptoms, variations, possible treatments, what to expect. My daughter was recently diagnosed with the disease and our family is gathering as much as information as possible to know what it is and how deal with it.
(Review Data Last Updated: 2008-10-08 00:50:20 EST)
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| 10-24-02 | 5 | 2\3 |
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Some books about scleroderma are clearly written with the medical community in mind and are way to technical for the average person. This book is directed to the average person and wrote in a way that can be easily understood by those who do not have medical experience. I highly recommend this book to every person with scleroderma and to ever person that is interested in learning the facts about this disease. Get your copy today!
(Review Data Last Updated: 2008-06-05 00:52:03 EST)
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