Positive Options for Antiphospholipid Syndrome (APS): Self-Help and Treatment

  Author:    Triona Holden
  ISBN:    0897934091
  Sales Rank:    427725
  Published:    2003-03
  Publisher:    Hunter House Publishers
  # Pages:    128
  Binding:    Paperback
  Avg. Rating:    5.0 based on 9 reviews
  Used Offers:    12 from $7.00
  Amazon Price:    $11.01
  (Data above last updated:  2010-06-21 04:22:09 EST)
  
  
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Positive Options for Antiphospholipid Syndrome (APS): Self-Help and Treatment
  
APS (also known as “sticky blood syndrome”) makes the blood clot too easily. It is often the cause of multiple miscarriages and is potentially fatal. Increasingly common, it threatens to become more prevalent than MS and lupus. This book takes an important look at this dangerously under-diagnosed autoimmune disease and provides medical information, case studies, and patient interviews to help the reader learn to cope.
                  Reader Reviews 1 - 12 of 12                 
  
  
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Reader Reviews Below Sorted by Newest First
01-21-10 5 (NA)
(Hide Review...)  Great Book on Rare Disease
Reviewer Permalink
Very little is known about the disease ANTIPHOSPHOLIPID ANTIBODY SYNDROME. This book ,I found on AMAZON was amazing. It answered all of my questions. Thank You AMAZON
(Review Data Last Updated: 2010-06-21 04:26:02 EST)
12-29-09 4 1\1
(Hide Review...)  Easy reading
Reviewer Permalink
This book is easy reading and informative. Although I have done my own research on APS, it is nice to have a small book with some basic information. The personal stories are helpful. I wish there was a more detailed book out there that went into more detail about autoimmune disorders. Overall, I would recommend it.
(Review Data Last Updated: 2010-01-22 04:41:16 EST)
03-11-09 5 (NA)
(Hide Review...)  Great Book,Very helpful
Reviewer Permalink
Great book and very helpful.I've always tried to be positive in the diagnosis I received less than 1 year ago.APS is not a fun disease,but can be managed with the right attitude and helpful doctors.A+ and hats off for this book.
(Review Data Last Updated: 2010-01-21 04:38:21 EST)
08-01-07 3 (NA)
(Hide Review...)  decent book - worth reading
Reviewer Permalink
This book contains helpful information for anyone suffering from APS and anyone who wants to understand the disease from a layman's point of view. The index contains some great resources for further research.
(Review Data Last Updated: 2009-04-05 10:46:52 EST)
04-08-07 4 1\1
(Hide Review...)  Very good for the newly diagnosed
Reviewer Permalink
This book should be a starting point in the search for answers when diagnosed with APS. I have been diagnosed over 7 years by now, and have found precious little information out there. This book is listed on the APS online support group website. This book is mostly testimonial but I found it is also informative, setting a good foundation for future doctor's office visits, since most doctors don't know much more than we do at this point. Keep in mind that while doctors will be interested in your comparisons to the testimonials in this book, what they will take more seriously is medical journals and articles written by experienced doctors in the field who can confirm what you probably already know.
(Review Data Last Updated: 2007-12-14 01:00:21 EST)
09-06-06 5 1\1
(Hide Review...)  Really Pulls It All Together
Reviewer Permalink
I have done a lot of online research regarding APS. While most sites have nice information, it is usually only a page or two, highlighting bits and pieces. This book really pulls it all together, clearly linking symptoms to help define the "big picture" - both historical and forward looking. It is also in an easy to read format that covers a good amount of information without being overwhelming. Nice credibility with the Foreword by Dr. Hughes and Dr. Roubey. This is a must have for APS patients and family!
(Review Data Last Updated: 2007-12-14 01:00:21 EST)
09-05-06 5 (NA)
(Hide Review...)  Really Pulls It All Together
Reviewer Permalink
I have done a lot of online research regarding APS. While most sites have nice information, it is usually only a page or two, highlighting bits and pieces. This book really pulls it all together, clearly linking symptoms to help define the "big picture" - both historical and forward looking. It is also in an easy to read format that covers a good amount of information without being overwhelming. Nice credibility with the Foreword by Dr. Hughes and Dr. Roubey. This is a must have for APS patients and family!
(Review Data Last Updated: 2007-04-09 01:03:30 EST)
11-14-05 4 2\3
(Hide Review...)  Fairly Good Read
Reviewer Permalink
Fairly Good Read. Highly recommend this book. Has many supported facts and documentation.
(Review Data Last Updated: 2007-12-14 01:00:21 EST)
11-14-05 5 2\4
(Hide Review...)  Excellent!
Reviewer Permalink
Great book for newly diagnosed patients. Personal stories & easy to read. Was recommended to us as a must have for the APS patient. I agree!
(Review Data Last Updated: 2007-12-14 01:00:21 EST)
03-02-04 4 8\8
(Hide Review...)  Finally, there's "a" book on APS!
Reviewer Permalink
Two years ago, after two clots while only 32-33 years old, I was diagnosed with APS. I've really searched and struggled to find information on this topic, even reading and re-reading through medical journals my doctor gave me when she couldn't find patient information to answer my questions. There exists no adequate information on this topic online. This book's content is limited but clear and concise and far exceeded my expectations. The case studies are extremely helpful. One story even clarified some critical misinformation I've carried that could have led me to my third clot! I found some parts opened my eyes (and were emotionally painful) but most were hopeful and optimistic. Most importantly, it did for me what I think the writer intended... it revived my motivation to be my own advocate, to not surrender responsibility for my medical condition to anyone (including doctors) and never stop educating myself. The only improvement to content that I could suggest is the addition of practical suggestions on prevention of symptoms and dealing with it.
(Review Data Last Updated: 2007-07-10 10:14:16 EST)
03-01-04 4 6\6
(Hide Review...)  Finally, there's "a" book on APS!
Reviewer Permalink
Two years ago, after two clots while only 32-33 years old, I was diagnosed with APS. I've really searched and struggled to find information on this topic, even reading and re-reading through medical journals my doctor gave me when she couldn't find patient information to answer my questions. There exists no adequate information on this topic online. This book's content is limited but clear and concise and far exceeded my expectations. The case studies are extremely helpful. One story even clarified some critical misinformation I've carried that could have led me to my third clot! I found some parts opened my eyes (and were emotionally painful) but most were hopeful and optimistic. Most importantly, it did for me what I think the writer intended... it revived my motivation to be my own advocate, to not surrender responsibility for my medical condition to anyone (including doctors) and never stop educating myself. The only improvement to content that I could suggest is the addition of practical suggestions on prevention of symptoms and dealing with it.
(Review Data Last Updated: 2006-07-07 19:24:45 EST)
09-04-03 4 10\10
(Hide Review...)  Pleasantly Surprised with the Info Here!
Reviewer Permalink
When I was diagnosed with antiphospholipid antibodies earlier this year, I was unable to find much more information on the syndrome than a page or two on an outdated website, or the same blahbittyblah medical terminology. When I tripped over this book, I ordered it, figuring it would be little more than a glorified pamphlet.

I was pleasantly surprised! While it is by no means a textbook on APA and the ramifications of living with the syndrome, it had more information on the condition than I have found ANYWHERE, including what I learned from my doctors. I initially turned straight to the recurrent miscarriages section of the book (the book is divided into chapters on the different manifestations of APA: migraines, heart conditions, recurrent miscarriages, strokes, etc.) as that is how APA affects me, but I later found the other chapters to be just as informative, even though I hadn't thought they applied to my situation.

All in all, I was very pleased with this book. It exceeded my expectations!

(Review Data Last Updated: 2006-07-07 19:24:46 EST)
  
                  Reader Reviews 1 - 12 of 12                 
  
  
  
  
  
  

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