Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome
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| Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome | |||||||||||||||||||||||||||||
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"Parting the Fog" is a candid, first person account of what it is like to walk in the shoes of someone suffering from fibromyalgia/chronic fatigue syndrome. It relays the seriousness of this condition in an easy-to-read manner, while employing humor and focusing on hope. It is a combination of prose and inspiring poetry. Each of the 17 short chapter ends with a personal page to enable sufferers to record their own thoughts and experiences, if they so choose. It also includes: a "Don't Ask-Do Ask" list for "Normals"; a letter to supportive people; a description of the treatment plan the author believes holds the best hope of recovery from symptoms; and chapters on perspective, faith, loss and hope. It is unique, personal, and will help others understand the struggles those with FMS/CFS are faced with. It is an important addition to the FMS/CFS sufferer's library.
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| 07-24-08 | 5 | (NA) |
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This is one of the best books I have read on this subject! It is funny and heartwarming at the same time. I would highly recommend this book to anyone.
(Review Data Last Updated: 2008-09-05 01:28:15 EST)
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| 04-14-08 | 5 | (NA) |
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It wasn't quite what I expected but it is a very easy and understandable read. There are some hints for things to try and it may work for some. It is a story about one persons trials and sufferings from a very invisible illness. The second thing it did for me is helped be get over some depression and made me feel better about myself. It was refreshing to hear I'm not the only one with some symptoms and helped me realize it's not my fault or in my head. If you get a chance to read this book, I highly recommend it, especially if you are having doubts about yourself.
(Review Data Last Updated: 2008-07-25 01:27:43 EST)
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| 03-11-08 | 5 | (NA) |
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I found me on just about every page in this book, and you know what? I'm okay. This book is very validating and sometimes we need that. I'm glad the author took the time and ENERGY (of which we usually have a crisis) and brought this book together. We can look at ourselves and others with this affliction with understanding and mostly, compassion. For many it will be a new view of the fact that fibro changes you and your life but you still matter. Maybe it will soften the edges of the need to ask for help. The cover is captivating.It perfectly illustrates those moments of clarity and how beautiful they are. Like leaves on a tree in summer (here in New England, anyway), enjoy them while they are there. Mostly, remember, God is always there.
(Review Data Last Updated: 2008-04-22 01:23:18 EST)
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| 11-01-07 | 4 | (NA) |
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This book helped me to explain myself when dealing with people that do not understand my fibro. It was helpful to me, and others around me. She explains things in terms that are easy to understand. Great book, would recommend to anyone that needs help in explain their disability.
(Review Data Last Updated: 2008-03-08 01:27:35 EST)
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| 10-23-07 | 5 | (NA) |
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I bought "Parting the Fog" about 2-1/2 years ago along with about 15 other books on Fibro and found this book to be the absolute best! I was able to understand what I was reading unlike the other books that only doctors would be able to understand. The poems touched my heart and I could totally relate to almost each one of them in some way! I am so happy with this book that I tell everyone about it and have loaned it out to quite a few people in my support group. They have read my copy and loved it so much that they ordered their own copies! I would totally, 110% recommend this book. Sue Jones is an incredible author and an amazing person who shares in her book the trials and tribulations that go along with having Fibro. She also sets an example to others with Fibro that it's not the end of the road for us, there is life after the diagnosis! Well Done, Mrs. Jones!
(Review Data Last Updated: 2007-11-02 01:33:05 EST)
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| 10-08-07 | 4 | (NA) |
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This book is written from the heart and touched my heart tremendously. First book I've ever read on Fibro/CFS that explained the pain that I've experienced. Thank you Sue Jones!!! I can use this book to help my husband and family understand my condition better.
I meant to give this book 5 stars, can not figure out how to change it now (Review Data Last Updated: 2007-10-23 01:27:48 EST)
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| 09-22-07 | 5 | (NA) |
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I'm a 27 years old woman in Denmark with FMS and I have to say to everyone who has this disease or anyone who lives with someone who does, please do yourself a favor and read this book it will answer a lot of questions that you might not ask your loveones directly and it will help you understand what its all about. I its nothing less then fantastic,it gives you a feeling of hope and that you're not alone with this.
The poems in this book has been worth cold to me. Thank you Sue Jones for sharing with us. (Review Data Last Updated: 2007-10-09 01:25:58 EST)
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| 08-08-07 | 2 | 1\1 |
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As someone who suffers from fibromyalgia, I've often felt lonely and misunderstood. I purchased this book hoping to find a relatable story within its pages; I'm sad to say my hopes weren't realized. I longed for Ms. Jones to get more specific about her experiences through prose, rather than poetry (I knew there would be poems, but I didn't expect so many). I have nothing against poetry--in fact, I've written a poem now and then about my own fibromyalgia--but I felt the poems took up too much of the book.
As someone who spent the first 26 years of her life in the midwest, I recognized that certain stoicism in Ms. Jones' writing; it echoed the messages I was taught as a child: life's hard, deal with it, don't complain. I actually wanted her to complain more, or at least more specifically. I totally agree that we who suffer need to find hope and move forward, but sometimes, we need to moan and mourn a bit first. I didn't get enough of that. Perhaps this book just isn't the right one for my stage of this condition? I'm glad others have found it helpful, but it was frustrating for me. I found myself wondering if she would "get" me if we were to speak and that isn't what I expected when buying this book. One example of lack of specifics: the chapter on "guai" mentioned a woman who'd taken guai for two years and three months. Only in the last three months had she found relief. For the first two years, she found it "confusing." How? Why? In what specific ways? Ms. Jones herself mentioned that the protocol can be confusing, but I found myself wanting to know MORE of what she and the other woman meant, rather than be directed to another book for the answers. I'll be donating this book in hopes that someone can find comfort. For me, it was a waste of time, except to spur me to write my own account one day. I gave it two stars for the effort, and out of respect for a fellow sufferer. (Review Data Last Updated: 2007-09-23 01:28:44 EST)
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| 07-14-07 | 5 | 1\1 |
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This book was very emotionally satisfying. I felt that this author was writing for me and validated my feelings and experiences. It was a nice change from a medical or technical book regarding Fibromyalgia. It is also a great book to share with someone for a better insight into what a typical day can be like.
(Review Data Last Updated: 2007-08-08 01:24:47 EST)
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| 05-08-07 | 5 | 2\2 |
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Although I don't personally suffer from Fibromyalgia or Chronic Fatigue, I do have family members that are afflicted. This book is an excellent way to "part the fog" for those of us who can not relate to the wrath this illness wreaks on it's victims. It is honest and simple, yet eloquent, and does not bog us down with medical jargon or some hidden agenda. I feel that anybody who has a friend or loved-one living with Fibromyalgia should read this book to get first-hand insight into their lives that you may not get elsewhere. After reading this personal account, I had a completely different understanding and appreciation for the symptoms and difficulties experienced by it's sufferers. It is an eye-opener!
(Review Data Last Updated: 2007-07-15 01:26:32 EST)
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| 05-05-07 | 5 | 3\3 |
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It was so comforting to read Sue's book. It's nice to know that someone like her can explain this terrible chronic illness and give you hope and encouragement. I loved reading her poems and knowing that she is a Christian woman. I also bought her CD, "Embracing His Presence, Renewing My Strength," and meditate each night with the beautiful Christian background music and her soothing, relaxing voice. Thanks, Sue, for your gift!
(Review Data Last Updated: 2007-07-02 12:37:20 EST)
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| 03-18-07 | 5 | 3\3 |
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Wonderful, written very well and I felt she was writting my life.
(Review Data Last Updated: 2007-07-02 12:37:20 EST)
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| 03-17-07 | 5 | 1\1 |
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Wonderful, written very well and I felt she was writting my life.
(Review Data Last Updated: 2007-04-11 01:35:07 EST)
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| 03-04-07 | 2 | 5\9 |
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Sue Jones did allow non-sufferers a descriptive glimpse into the daily struggles with this illness, but I found the overall tone in her writing laced with too much over-the-top dramatic and corny quasi poetry.
As a long time fellow sufferer I found myself cringing through her prose. I found the writing style "rough" and amateurish. I was expecting some new insight and information, but was left feeling like she wrote this book to promote her message board full of devotees to the unsubstantiated "quai" treatment. If you like the wordy and fluffy journal-blog/message board style - go for it. If you are looking for realistic treatment options - pass on this. It's a quick read. Yes, the author expresses deep empathy for fellow sufferers, gratitude for the support she receives from her family and her faith is obvious. She doesn't offer much more than words of encouragement layered with honey dripping dramatic chapters about the woes of this syndrome. I was left disappointed, hoping for a more fact laden presentation. Massive amounts of mucus thinners for months on end, lining the pocket of this doctor who is tauting the treatment, promoting the message board? No thanks. These people are being given false hope while enduring the suffering. Why anyone buys into this is beyond me. I'm a medical professional and I found it absurd to say the least. (Review Data Last Updated: 2007-07-02 12:37:20 EST)
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| 02-13-07 | 5 | 2\2 |
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This is such a delighful easy reading book with such great poems!! If you, or someone you know, is living with FMS/CFS this is a MUST have book. I highly recommend it for therapist as well. It has questions after every chapter you can use in group or individual sessions. As a retired Federal Clinical Social Worker I plan to share this new found tool with all my former coworkers at one of the largest Veterans Hospital in the U.S.
(Review Data Last Updated: 2007-07-02 12:37:20 EST)
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| 11-05-06 | 5 | 5\5 |
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My wife has lupus, fibromyalgia, and hypothyroid. This book helped her find humor and hope in living with a chronic illness. It further helped her to realize that she is not alone. We highly recommend this book.
(Review Data Last Updated: 2007-07-02 12:37:20 EST)
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| 11-04-06 | 5 | 2\2 |
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My wife has lupus, fibromyalgia, and hypothyroid. This book helped her find humor and hope in living with a chronic illness. It further helped her to realize that she is not alone. We highly recommend this book.
(Review Data Last Updated: 2007-02-14 02:15:37 EST)
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| 09-22-06 | 2 | (NA) |
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Sue Jones write helpful personal account of fibromyalgia. She groups Fibromyalgia and Chronic Fatigue together and simply refers to them as FMS. This does a bit of diservice to CFS. They do have over-lapping symptoms, but CFS doesn't have many characteristic symptoms that fibromyalgia has. Generally, her account is readable although she does discusses (briefly) only one treatment (unusual) treatment that has helped her. I would not recommend this book as source the sole source of understanding FMS/CFS or its treatments. It is a readable account of one person's experience, but overall does not offer many insights.
(Review Data Last Updated: 2006-11-05 01:44:17 EST)
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| 03-15-06 | 5 | 12\12 |
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i encourage anyone with fibromyalgia/ chronic fatigue syndrome to read this book and share it with anyone you come in contact with , especially family members, doctor's and psychiatrists. Ms. Jones wrote the book simply, and her writing style made it very understandable and user friendly, especially to people who have difficulty maintaining attention and concentration. I was able to read the book in one sitting and felt much of the information was written as though the writer was speaking directly to me. This book described my feelings and problems as if Ms. Jones "walked in my shoes". Definitely worth buying and keeping by your bedside whenever you need a friend to support you and one who appears to understand the ups and downs of living with this illness.
(Review Data Last Updated: 2006-10-02 01:42:47 EST)
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| 10-14-05 | 5 | 10\11 |
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This book gives a great description of what living with Fibro is like. It helped me not feel so alone with my illness and realize that others do have similiar symptoms. If I had read this book earlier it would have saved me from a needless bladder surgery that did more harm than good.
(Review Data Last Updated: 2006-10-02 01:42:47 EST)
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| 04-23-05 | 5 | 22\22 |
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Finding this book was a salvation for me. Not clinically written, this is the personal insight of another human revealed for us to benefit from. For myself, coming from a very strong work ethic where complaint of illness was not acceptable, a Fibromyalgia diagnosis has been very frustrating and difficult to accept. I was able to identify with Sue's story enabling me to feel less alone and better equipped to cope. Each chapter provides a wonderful explanation of all facets of Fibro life written from a sufferer with an excellent attitude laced with humor and compassion. The end of each section enables you to write about your personal experience with the issue discussed so I felt able to unload some of my frustration as well as share with family and my Fibro support group, my personal story. On my * bad * days I can re-read my writing and understand I have had days like this before, they will pass and better days will come, leaving me with hope and feeling more relaxed, less uptight and kinder to myself. Those with whom I share the book who don't understand what life is like with this affliction have a chance to appreciate the impact it has on your life.
I very highly recommend owning 2 copies of this book. One for writing your most private feelings for yourself and those you feel comfortable sharing said feelings with and a second copy with a less personal journal to share with others you are not as close to. (Review Data Last Updated: 2006-10-02 01:42:47 EST)
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| 04-11-05 | 5 | 18\18 |
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I have suffered dreadfully with FMS and all of the "trailer diseases" that it brings for many years. In those years I have read countless books, articles, and websites on this cruel disease...regardless of how far-fetched they seemed. In this book I finally found a writer who does not presume to repeat the same information we have read again and again. She avoids medical jargon and instead discusses the effects of the disease on the victim's whole-life experience. She has written poetry that is at times quite humorous and at others heart-breaking or hopeful. At the end of each chapter, she provides questions for your own reflection. I personally answered the questions on separate pages. This allowed me to make her story MY story as well. I shared the book, which is short easy reading, with my family. Each person that read it told me, "I finally understand. Thank you." The experience therefore is very personal for each sufferer. You could choose to not share the personal pages for readers you did not feel so close to (bosses, colleagues). Doctors should recommend this book to all FMS patients, and as victims we should recommend it to one another. PARTING THE FOG is spot-on reading for all those touched by Fibromyalgia.
(Review Data Last Updated: 2006-10-02 01:42:47 EST)
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| 07-15-04 | 5 | 17\17 |
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This book is just incredible. Sue Jones does a wonderful job putting into words, what I never could. The book is an easy read, which is a big plus for those of us with "fibro fog". I bought the book for the poems, but ended up hooked on the whole thing and read it all in one night! Not only has this book given me comfort and a new level of understanding, but I know now that I am not alone. This is a great book to pass around to your loved ones, since they are also struggling. Sue Jones is my new hero! ;-)
(Review Data Last Updated: 2006-10-02 01:42:47 EST)
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| 07-11-04 | 5 | 11\11 |
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Reading Sue Jones' words was like looking into a mirror of my life over the past two years. I read it and did the workbook type activities in one sitting (through the fibrofog), it is an entertaining, enlightening and honest portrayal of what FMS is. While I purchased this book for myself it is a must read for family members dealing with FMS themselves. This book won't make them feel guilty and will help them know how much we appreciate them.
(Review Data Last Updated: 2006-06-19 23:19:13 EST)
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| 03-25-04 | 4 | 5\7 |
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Great book for people that you want to know about fibromyalgia. Little sections after each chapter for you to fill out about your symptoms.
(Review Data Last Updated: 2006-06-19 23:19:13 EST)
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| 02-29-04 | 5 | 26\26 |
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This is a fantastic book!!!! Over the past 21 years I have personally treated thousands of patients suffering from fibromyalgia. Sue Jones articulates their suffering beautifully and eloquently. This book should be read by all who suffer from or are close to those with this debilitating condition. Please......do yourself a favor and read this book!
Dr. Michael L. Johnson author of "What Do You Do When the Medications Don't Work--A Non-Drug Treatment of Dizziness, Migraine Headaches, Fibromyalgia, and Other Chronic Conditions". (Review Data Last Updated: 2006-06-19 23:19:13 EST)
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| 02-27-03 | 5 | 55\55 |
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For all of you that are suffering with Fibromyalgia and/or CFS, as I am, I recommend this book. It is not only good information for those who are ailing, but for those they live with, or are just very close to. This was the first time in a long time I read a book that I could not put down. What I think is most important is that Sue Jones suffers from the same problems and knows first hand how we all feel. She offers some very good tips on "what not" and "what" to say to us who are not feeling well. Not everyone understands a person with FMS/CFS and if you are serious about learning because of someone you love, or for whatever reason, Read This Book!
(Review Data Last Updated: 2006-06-19 23:19:13 EST)
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| 08-28-02 | 5 | 35\35 |
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"Parting the Fog" is a moving and educational story of the tragic, lonely and heroic struggle of someone with Fibromyalgia. This book is fundamental for those who suffer as well as those who are family and friends. It will provide solace and understanding for all who come into contact with this debilitating and misunderstood disease. As a Fibromyalgia sufferer, "Parting the Fog" not only gave me validation for what I am feeling but also the comfort of knowing I am not alone. I highly recommend this book.
(Review Data Last Updated: 2006-06-19 23:19:13 EST)
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