Living with Lymphoma : A Patient's Guide
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| Living with Lymphoma : A Patient's Guide | |||||||||||||||||||||||||||||
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When neurobiologist Elizabeth M. Adler was diagnosed with non-Hodgkin lymphoma, she learned everything she could about the disease, both to cope with the emotional stress of being diagnosed and to make sure she made the best possible decisions for her treatment. In Living with Lymphoma, she combines her knowledge of lymphoma -- both scientific and personal -- with the desire to help other patients come to grips with this complex, and often baffling, disease. Adler thoroughly explains the disease, describing the many different kinds of Hodgkin and non-Hodgkin lymphoma, the wide range of symptoms, and the various treatment options available. Convinced that understanding lymphoma's biological basis will help patients make better treatment decisions, Adler explains basic cell biology and how the immune system functions. Readers will gain sufficient background to understand and evaluate medical literature, and to ask their physicians questions specific to their own needs. In the introduction, Dr. Michael R. Bishop of the National Institutes of Health provides a physician's perspective on the delicate nature of doctor-patient relationships in the context of a life-threatening disease -- especially the importance of patient education and open communication in making decisions about treatment options and quality of life. Drawing on her scientific expertise and personal journey -- as well as her empathy, passion, and humor -- Adler has created a valuable guide for people with lymphoma and the people caring for them. |
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| 05-04-08 | 5 | 2\2 |
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Dr. Adler's book is the best, by far, of all the popular books on lymphoma. It's informative and easy-to-read. If there is a term you don't understand, you can easily find the term explained with a simple Internet search. I am a lymphoma survivor since 2001. I gave away most of the other books on the topic--they were mostly diaries. Although interesting, the others don't match Dr. Adler's in content that helps one fighting lymphoma.
(Review Data Last Updated: 2008-11-30 02:03:15 EST)
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| 02-08-08 | 3 | (NA) |
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I was hoping for a book that would give us more practicial information-as the title of the book, "Living with Lymphoma" implies I found most of it very difficult to understand and hard to read. In short the book is too technical for our needs. We just wanted to know, "What does this mean for us,' and " How can we best deal with the my husband's diagnosis of Lymphoma"? I was looking for something practically helpful and encouraging. If that's what you are looking forward this is not the book for you. However, if you'd like to know about T Cells, B Cells and how the cells connect, etc in a very technical manner, this might be the book for you.
One big flaw is that the author, who was diagnosed with cancer again does not talk about the value of a solid support system. In these past weeks since my husband's diagnosis I don't know what we would have done without those who have gathered around us to support and pray for us, which helps us to be and to stay positive. If you are looking at this book because of a recent diagnosis I pray as you read this review God's presence and comfort will lead you to Him. Find a book that gives you hope you don't have to dig for in a way that comforts you and gives you practical advice about what to do and how to do it. (Review Data Last Updated: 2008-05-20 00:55:41 EST)
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| 01-27-08 | 5 | (NA) |
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This is the first book I read after being diagnosed with Lymphoma and still my favorite.
(Review Data Last Updated: 2008-02-09 00:14:27 EST)
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| 08-03-07 | 4 | 3\3 |
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This book is a terrific idea for individuals recently diagnosed with Lymphoma. It provides plenty of very useful and direct information that can help cancer patients make vital life-changing decisions. There is also a very useful glossary and index in the back.
(Review Data Last Updated: 2008-01-28 00:14:39 EST)
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| 05-08-07 | 5 | 1\1 |
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This book was purchased as I was undergoing my own diagnostic procedures after MRI/CT scans showed probable non-hodgkins lymphoma. I appreciated the author's first-person perspective on her experiences, which helped to normalize some of my own. The book offers good, basic descriptions of many of the different lymphomas (lymphomi?) possible, and thoroughly describes the possible treatment options. I found her explanations of chemotherapy types very helpful, making the whole topic less daunting and scary. The chapters that included cell biology, immune system, & genetic basis for lymphoma were tough to read through--but I found these gave great background for understanding what my oncologist is thinking, where he is going with his recommendations, and makes me a more involved patient. This has really helped me to cope with these first weeks/months of my disease, thank you Ms. Adler!
(Review Data Last Updated: 2007-08-04 00:13:21 EST)
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| 04-06-07 | 4 | 2\2 |
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Although there are a lot of technical/medical terms, I really enjoyed reading this book. I only wish it was available when I was diagnosed 5 years ago. The book helped explain some terms clearer than my doctors did, or maybe it was because I didn't have to try to remember everything, I could always go back and re-read a chapter or paragraph. I only hope my original treatment was sufficient to "cure" me and I won't need this information again in the future, but it is nice to know it is there and availble to me.
(Review Data Last Updated: 2007-07-10 10:13:48 EST)
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| 04-02-07 | 5 | 2\2 |
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I have heard my husband say to others," I'm living the cancer and that is all I can handle. My wife takes care of the reading." I'm in the process of reading this book, even getting up in the middle of the night to find an answer to a question that I might have regarding my husband's condition; he has non-hodgkins lymphoma. The book doesn't read like a text book, it reads as a first person account. The author diagnosed with this disease tells us what she went through, and has survived many years post-non-hodgkins lymphoma.....I had read portions of this book in the library, went home and ordered from Amazon.com.... Norma J.Johnson
(Review Data Last Updated: 2007-07-10 10:13:48 EST)
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| 09-03-06 | 5 | 3\3 |
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Dr. Adler shares her experience with Lymphoma. My husband was recently diagnosed with lymphoma. This book tells current and factual information regarding diagnosis, signs & symptoms, side effects & treatment. When I can understand the diagnosis, I don't fear it. I would highly recommend this to anyone with any type of cancer, especially lymphoma. Judith Hafner
(Review Data Last Updated: 2007-07-10 10:13:48 EST)
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| 08-23-06 | 4 | 1\3 |
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I read this book after I completed my last round of R-CHOP and sure wish I'd read this book before I had started my treatments! Even so, it is full of helpful information. There are lots of technical terms and complete sections that I just couldn't understand, but what I did read was informative. If you're looking for a book that will help you cope with a long term living with Lymphoma, don't buy this book. It's really more for how to cope with the treatments, side effects from the different forms of chemo, what to expect in the future, etc. The author, being a doctor, was certainly not very proactive about her illness until she found out that it was non-hodgkins lymphoma. All of her odd symptoms were misdiagnosed and mis-treated for quite a while before she was finally diagnosed accurately. This in itself is a lesson, but unless you have lymphoma, you wouldn't be reading this book, so it's not very helpful to the lymphoma patient except to show us that those in the medical field aren't perfect.
(Review Data Last Updated: 2007-07-10 10:13:48 EST)
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| 08-22-06 | 4 | 0\2 |
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I read this book after I completed my last round of R-CHOP and sure wish I'd read this book before I had started my treatments! Even so, it is full of helpful information. There are lots of technical terms and complete sections that I just couldn't understand, but what I did read was informative. If you're looking for a book that will help you cope with a long term living with Lymphoma, don't buy this book. It's really more for how to cope with the treatments, side effects from the different forms of chemo, what to expect in the future, etc. The author, being a doctor, was certainly not very proactive about her illness until she found out that it was non-hodgkins lymphoma. All of her odd symptoms were misdiagnosed and mis-treated for quite a while before she was finally diagnosed accurately. This in itself is a lesson, but unless you have lymphoma, you wouldn't be reading this book, so it's not very helpful to the lymphoma patient except to show us that those in the medical field aren't perfect.
(Review Data Last Updated: 2006-09-03 03:32:18 EST)
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| 07-05-06 | 4 | 1\1 |
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This book was the best source of information for both my husband and I as we go through treatment. It answered questions and helped formulate others for the Dr. to answer. It is by my bedside everynight.
(Review Data Last Updated: 2006-07-15 00:30:12 EST)
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| 07-05-06 | 4 | 3\4 |
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This book was the best source of information for both my husband and I as we go through treatment. It answered questions and helped formulate others for the Dr. to answer. It is by my bedside everynight.
(Review Data Last Updated: 2007-07-10 10:13:48 EST)
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| 05-14-06 | 5 | 4\4 |
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This book is everything it should be: well written, and even entertaining; thorough and comprehensive, but still clear and easy to understand; intelligently organized and easy to use. In the weeks after my lymphoma diagnosis, I found reliable answers to most of my questions here. Adler tells just enough of her own story to keep things interesting -- and unfortunately for her, but fortunately for the reader, she has been through pretty much everything, so she can speak about side effects, procedures, etc. from personal experience. I absolutely recommend it -- in fact, any new patient should get two copies, one for yourself and one for your care partner/advocate/concerned relatives. Then you can tell them to look up all their questions here!
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 05-05-06 | 5 | 5\5 |
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I was very pleased to find this book which is not only easy to read (and I am extremely near-sighted) but very informative without going over my head. I think it does an excellent job of providing basic information about the biology of non-Hodgkins as well as the treatment options and personal impact of the disease. I am now nine years past a diagnosis of stage IV marginal zone NHL and six years past treatment with Zevalin. I wish this book had been available back in 1997.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 05-05-06 | 5 | 4\4 |
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I still read a great deal about NHL, even though it's been over 15 years since i was diagnosed with stage 4 mixed small and large cell indolent lymphoma (to use the "old" terminology). This book provides both a highly readable account of the author's own experience with the disease as well as lots of medical information clearly explained. I wish this book had been available when i was first diagnosed. With my trusty reading glasses, i had no problem reading it and recommend it highly.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 05-03-06 | 1 | 0\3 |
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The type style and font size make this book extremely difficult to read. If you are over 50, I would pass it by.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 05-01-06 | 2 | 0\4 |
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Strictly as a resource, the book is okay, but I found much of it a bit deep in places and hard to follow. Since I was looking more for an alternative guide, this was not the book for me.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 03-01-06 | 4 | 1\1 |
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I found this book extremely informative. It is from a patients point of view and therefore very sensitive to the psychological element of dealing with the disease. The book is a one stop shop on Lymphoma for those of us who dont need all the medical jargon but would like to understand the words that are spoken to us by our physicians. I would highly recommend it to Lymphoma patients and to their families.
(Review Data Last Updated: 2006-03-05 17:19:48 EST)
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| 03-01-06 | 4 | 7\7 |
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I found this book extremely informative. It is from a patients point of view and therefore very sensitive to the psychological element of dealing with the disease. The book is a one stop shop on Lymphoma for those of us who dont need all the medical jargon but would like to understand the words that are spoken to us by our physicians. I would highly recommend it to Lymphoma patients and to their families.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 02-03-06 | 5 | 8\9 |
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A wide range of library holdings will want to make this a basic reference; from public libraries to college health collections. Neurobiologist Dr. Elizabeth Adler was herself diagnosed with non-Hodkin lymphoma, and had to cope with the emotional stress of diagnosis and many new decisions. Her Living With Lymphoma thus comes from both a scientific and a personal viewpoint and provides consumers with excellent coping strategies. Very highly recommended.
(Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 12-27-05 | 5 | 13\14 |
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It's been just a month since my non-Hodgkin lymphoma diagnosis became official, and two months since I've been aware of the strong possibility. Since then I've been engaged in a thorough search for information on the disease, and this is by far the most helpful book I've found. It was recommended to me by a good friend, who's also a lymphoma survivor - with about a year's more experience in traveling this road than I have. Written by a neurobiologist who contracted NHL herself, this book's got a powerful, one-two punch of personal testimony and very detailed medical information. Parts of it get a bit technical at times, but they're easily skipped over or saved for another day. (Better to have too much information than too little, I always say.)
If you've got lymphoma, or if you love someone who has, get this book. It will become your handbook on understanding the disease, and dealing with it. (Review Data Last Updated: 2006-07-07 19:23:49 EST)
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| 11-30-05 | 5 | 21\22 |
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Having read a number of books on lymphoma aimed at different audiences, I was leery of this book. Boy was I wrong - Living with Lymphoma is an excellent book filled with the information that patients, loved ones, and friends can use during diagnosis and treatment. Adler gives a personal touch from the patient perspective without making the book a personal journal and she does not skimp on the medical details you need as each type of lymphoma is different requiring different treatment details.
While no book seems to click with every person, this book is: - Current as to treatments in use today, not in 1999 - Aimed at a wide audience without skimping or overloading - Affordable compared to specialized medical texts If you would like a modern, practical, and affordable book on Hodgkin's or Non-Hodgkin's lymphoma, you should look at Living with Lymphoma first and foremost. (Review Data Last Updated: 2006-07-07 19:23:49 EST)
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