Controversial Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional Practice
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| Controversial Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional Practice | |||||||||||||||||||||||||||||
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One of the largest and most complex human services systems in Western nations has evolved to address the needs of people with developmental disabilities. In the U.S., for example, school budgets are stretched thin by legally mandated special education, and billions of Medicaid dollars annually are consumed by residential and professional services to this population.
The temptation of a quick fix is strong. Many parents desperately seek the latest ideas and place pressure on program administrators, who often are not trained to think critically about the evidence base for intervention efforts. The problems of people with developmental disabilities have historically been targeted by a wide range of professionals who rely on clinical experience and intuition and do not submit their claims to the tests of scientific research. Professional entrepreneurs have energetically promoted their treatments to a public perhaps too trustful of those with credentials. Thus, families and their children are buffeted by reforms founded on belief and ideologically driven management. Services fluctuate with the currents of social movements and rapidly shifting philosophies of care as policymakers and providers strive for increased responsiveness and individualization. These forces affect not only where and how, but how well people are served. Too often, services are less effective than they could be, or worse, damaging to personal growth and quality of life. Many treatments are based on poorly understood or even disproven approaches. What approaches to early intervention, education, therapy, and remediation really help those with mental retardation and developmental disabilities improve their functioning and adaptation? And what approaches represent wastes of time, effort, and resources? This book brings together leading behavioral scientists and practitioners to focus light on the major controversies surrounding these questions. The authors review the origins, perpetuation, and resistance to scrutiny of questionable practices, and offer a clear rationale for appraising the quality of services. In an era of increasing accountability, no one with a professional stake in services to individuals with mental retardation and developmental disabilities can afford not to read this book. |
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| 08-01-08 | 5 | 1\1 |
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This is a must-have for your autism library. The book begins with a brief history of modern medicine and then defines what separates science from fad and anecdote. Other reviewers here have discussed the way this book debunks modern fads and pseudoscience so I will focus on two other areas that really impressed me.
First, the editors concisely describe how to go about determining whether or not a treatment suggested for your child is based in science or not. After reading Controversial Therapies, I now have red flags that go up when someone suggests chelation or brush therapy or other therapies based in anecdote. Also I learned to expect specific goals from therapies and not the vague improvements usually promised. Second, the authors debunk many fad treatments for developmental disorders, but doesn't discount all of them. Instead, the authors teach the reader how to set up a scientific trial of one for your child based on facts. For instance, if your occupational therapist prescribes brush therapy to help overcome a certain behavior, you must define the behavior, measure the behavior without brushing, then measure it with brushing. In my son's case, like the case given in the book, my son's violent behaviors increased after brushing. I have since performed a trial on the effect of small doses of caffeine on his self-stimulatory behaviors (it helped). This book is an important work in developmental disability literature and I highly recommend it. I also wish you strength, laughter, and success on the way to recovery for your loved one with a disability. (Review Data Last Updated: 2008-11-06 04:50:39 EST)
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| 06-15-08 | 4 | 1\2 |
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Controversial therapies for developmental disabilities is an excellent book that describes a variety of approaches for the treatment of children and adults with developmental disabilities. There are 28 chapters that point out inconsistencies amongst therapies that claim to be effective for treating autism and other disabilities. This book points out in detail the difference between what is pseudoscience and what is science by pointing out important information about therapies such as sensory integration, facilitated communication, and other ineffective treatments. Many of the therapies described in this book are advertised as fun, loving, caring, and able to create relationships between care givers and children, which sounds appealing to parents. These therapies are not science-based rather they are based on intuition, and personal values and opinions. Take sensory integration for example, which lacks evidence that its effective for children with autism or for people with developmental disabilities, however some parents and professionals provide this treatment to individuals based off of claims that are made from other people and from the therapists that used this so called treatment.
Because of such claims uninformed parents spend a lot of time and money on therapies that have not yet been proven to be effective. This book can help such parents avoid potential dangerous treatments for their children. It's unfortunate that there aren't any laws that prohibit the use of treatments that have not been proven to be effective for the treatment of developmental disabilities. I think that it's unethical to provide such "treatments" and this book advocates for people with developmental disabilities about the truth of bogus therapies. The book also discussed why applied behavior analysis is an effective treatment compared to the other treatments described. It would have been great if the authors provided more information about the evidence for its efficacy in comparison to other methods. Nevertheless, this is an informative book for educators, parents, students and professionals. I enjoyed this book because I have new ways to articulate many of the fads described and provide rationales why it's not an effective treatment for people with disabilities. (Review Data Last Updated: 2008-08-04 05:21:33 EST)
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| 06-05-08 | 5 | (NA) |
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As an teacher educator this is a breath of fresh air - common sense and a spotlight on the ridiculous fads in education abound.
(Review Data Last Updated: 2008-06-15 05:08:12 EST)
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| 10-20-07 | 5 | (NA) |
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Finally, a book that takes an objective view on the current "quick fix" and "miracle" treatments that are seen in developmental disabilities, specifically in autism.
(Review Data Last Updated: 2008-06-06 05:08:01 EST)
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| 07-23-06 | 5 | 4\7 |
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Controversial Therapies exposes the ugly, inconvenient truth about sensory integration, auditory integration training, facilitated communication, positive behavior support, and a host of other fads and bogus treatments. Jacobson, Foxx, and Mulick have complied a set of chapters, and written many themselves, that provides all the ammunition that anyone needs to shoot down these wasteful and chronic malignancies that pervade the field of developmental disabilities and especially autism.
I use this text in my ethics course along with Ethics for Behavior Analysts (Bailey & Burch) and find that the combination makes for a great foundation for logical and responsible thinking about important treatment issues in our field. Jon Bailey co-author "How to Think Like a Behavior Analyst" (Review Data Last Updated: 2007-09-06 05:26:53 EST)
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| 07-23-06 | 5 | 4\7 |
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Controversial Therapies exposes the ugly, inconvenient truth about sensory integration, auditory integration training, facilitated communication, positive behavior support, and a host of other fads and bogus treatments. Jacobson, Foxx, and Mulick have complied a set of chapters, and written many themselves, that provides all the ammunition that anyone needs to shoot down these wasteful and chronic malignancies that pervade the field of developmental disabilities and especially autism.
I use this text in my ethics course along with Ethics for Behavior Analysts (Bailey & Burch) and find that the combination makes for a great foundation for logical and responsible thinking about important treatment issues in our field. Jon Bailey co-author "How to Think Like a Behavior Analyst" (Review Data Last Updated: 2007-10-21 05:24:49 EST)
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